November 22, 2010

• snow

  Its 28 degrees Farenheit, and snowing again.  We have about 3.5 accumulated inches, and now whatever is coming down.  Its BRR cold.  The moon was full last night and the sky clear until early in the morning.  Rob treked down to the river, and came back up and said it was so magical he wanted to take the kids.  But they'd been in bed for an hour.  I knew several of them weren't asleep as they were still murmuring in the bedroom.  So he went into the bedrooms took the ones that were awake and they went on a moonlight spree.  How cool is that?

  I'd already been outside for a good 20 minutes, and was BRR.  So I chose to stay in.  Its good to do crazy things with dad's sometimes.

  

  

  We remembered a piece of Rainee's health puzzle Saturday night.  She came home from her friends house happy but TIRED.  Played, Crafted and Headed to bed with color crayons and paper.  We let her craft quietly in her bed cause she has such a hatred of sleep.

  She came out about an hour later complaining of pain.  Rob listened to her with the scope--something we're making ourself  do more.  And said one lung definitely had diminished sounds, and slight crackles.  I asked Rainee what she'd been doing--and she said laying on her tummy to color.  I thought she'd grown out of tummy pain while being on her tummy, and now I suspect its one of the reasons she comes out at night in pain. 

  When she was a baby I would give her tummy time, and she would start making this horrible nasty loud wheezing sound.  We would get her off her stomache thinking she was allergic to the floor, blanket, whatever she was laying on.  Rescue her with albuterol, and after about an hour it would calm down mostly.  Eventually with much investigating at her six month check-up or so I told the pulmo she wheezed every time she was on her tummy.  The pulmo said what?  I said well I can show you. 

  Its never good when doctors at Children rush out to get another specialist.  Just saying.  Any how they described it as acute respitory distress, and ordered a bronchostopy and a bunch of other tests.  These were the ones that enabled us to know she had birth defects in her lungs and trachea, and the pulmo to come up with the suggestion to try atrovent instead of albuterol.  For whatever reason children who have trachea or bronchial malacia respond better to atrovent.  It was MIRACULOUS, and took much of the stress out of our lives.

  The doctor would question us about it from time to time, but we would just say "she never lays on her tummy cause we stopped it, or I assume she gets off it when she's miserable.

  She didn't, she wasn't.  LOL 

  Saturday night she'd been in laying on her tummy coloring for about an hour.  And it hurt.  And it took us about an hour after she was on her tummy to get her comfy again.  So I discussed with her tummy laying probably not a good idea for long periods of time.  And told her the above story.  She is active in trying to stop the pain these days, so I suspect one of the reasons she's miserable may have come to an end.  It can't hurt to hope right?

  ~~~~~~~~~~~~
  In other news Samuel and Kaylin were discussing something and Sam observed.  "Its just one of those weird things that happened."

  Rob and I can't stop snickering.  Because so much of Samuel's life can be described by that sentence.  *nods*  It explains the holes in the walls, the broken hairbrushes, the brothers and sisters that get hurt cause Samuel wasn't aware of his body and who it hits.

  Yup.

  "It's just one of those weird things that happens."

  

  • 12:17 pm
  • 2 Comments