Month: February 2003

  •  Its picture time.    We had a lovely day playing outside in the yard and doing some burning.  So  I actually had time to take pictures.  First on our list we have Midge doing yard work.  She had a lovely time raking leaves.  Now if we could only get her to rake it into a pile......


                       


    For snack we had a hot dog roast, and to Mari this was very very serious business.  One must not smile while eating hot dogs.  bwahahaha

                      


    The big kids had a lovely time pushing Rainee in her puppy dog toy all over the yard.  Of course when they got to the bottom of the hill, mommy had to carry Rainee back up, but hey it was still fun.  And they were all just so cute. 



       


    Oh yes, and ummmmm  mommy did a silly thing, and for Valentines day she gave Rainee her first sucker.    Rainee thought it was quite nummy!!!


                   


    and here we have  hd and goldie.  goldie was soooooo happy to play with his kids again. 

  • Good morning


    Okay Sarah, I just want to say...NO MORE DREAMS ABOUT ME BEING PREGNANT!  K?????


    snicker


    I have actually been worried I was for the last week and a half.  Due to some bodily signs.  I'm not~~took two tests snicker just to make sure.   So, I guess its just aunt flo trying to come back after a almost two year break.   I wish she'd make up her mind and quit worrying me.


    Somebody spread a rumour around church that I was pregnant.  And somebody else (besides Sarah) dreamed I was.  What is it with everybody thinking we need number 6????? snicker


    We're getting a new propane stove on Tuesday and WEdnesday.  I'm so looking forward to it.  NO MORE HAULING FIREWOOD!!!  It is just something we do NOT need to deal with with the age of our kids etc.  Also, we're 98% convinced Princess' is allergic to it, so out it goes.    bu-bye


    I actually do NOT have any place I need to go or be today.  bwahaha  I wonder how long that will last?  


    Do you think I could crawl back in bed instead?

  • Good evening


    I finally got to go grocery shopping.  And my life actually feels caught up (for now )  It is a GOOD feeling.


    Munchkins are having a hard time getting to bed tonight.  (What else is new?)


    Rainee's sats dropped to 89 for 5 terrifying minutes last night.  But she started waking up and moving around and they bumped back up.   Needless to say the rest of the night I was MAJORLY on edge.   Trying to decide of the pulse ox is a good thing or not. 


    And Princess' asthma is quite BAD right now.  Bad enough that if it isn't clear in the morning, I'm making an appointment for her.  *sigh* *whine* *gripe* *moan* *ugh*   She's been breathing between 50-60 a minute.  And some of it sounds like a dog panting.       Poor thing, she still isn't quite old enough to always tell me somethings wrong.  She'll just get quiet, and I'll realize she can't breathe.  She doesn't wheeze like Rainee.  You can hear Rainee's breathing across the room when she's in distress, she just gets super duper quiet.  Guess I'll just watch her even closer.


    Watching the new Survivor.  But, I may go to bed instead of watching it.   Sleep is such a fleeting thing around here.


    This blog is lacking in enthusiasm huh?  I guess its 'cause I can't stop yawning.  I tried to do a morning blog, but I couldn't get online.  Sooooooooo instead of boring you further, I'll end here.


    Have a night!

  • Good morning


    Well, we actually ended up having fun yesterday as we went to get the pulse ox.  The kids were quite well behaved.  It was sunny and nice.  And I got to do a bit of impromptu shopping.  We even played on a beach for a bit.  


    We borrowed a plug in at the health care place to give Rainee a treatment, and gave her a treatment in our van until the ciggarete lighter adapter died.  UGH!  And she's doing quite a bit better. 


    Okay, now the much waited and anticipated pictures.  snicker


    Okay this first picture pretty much sums up when the kids visited.  Can you tell which is which.  All you can see is legs & hands flying everywhere.  Visiting was HARD work.  snicker.


                   


    The first day Rainee did NOT like the oxygen tent, so this was our compromise....such as it is.


                        


    Here's Rainee and her lovely new face feature. 


                      


    And here's Rainee when she learned to move.  She learned to move, and she desperately tried to scoot out of the room.  snicker.   I want to put a caption on this.  LET ME OUT!  But if you look closely she has a "leash" (the pulse ox cord) trapping her.  hehehe



    Because it was RSV she wasn't allowed to leave the room for 6 days.  She was stir crazy, and so was I.  But we survived.  And we'll move on to her next health challenge.  February 27th comes rapidly.  May she be healthy enough to do the procedure.  PLEASE pray for that.

  • Good morning  


    Rainee's working on hospital time and was up at 6.  As daddy did night duty, and all of Rainee's evening meds I got up with her.  I actually didn't get out of bed all night, the first in a week.  LOL  We had to give Rainee treatments every 4 and 6 hours, so daddy was up a lot.  Plus Mari Man decided sleep was highly over-rated and wanted to get up and play.   We finally nixed that one, and put him in the crib and ignored him.  (bad us )


    Rainee slept good, and is doing not too bad.


    Well, our hectic life continues.  We want to know if Rainee's saturation (stats)  always drop at night.  So with the blessing of the pulminologist we are getting a pulse ox machine to use on her for a month or so.  The problem?  In order to get it we have to drive 2 hours one way.  If we were willing to wait a week they would deliver it to us, but ummm NOT!  So, after Rainee's doctor appointment I guess we're driving to Bremerton.  It is so absolutely NOT what I wanted to do on my husbands one day off.   ugh, sigh, whine, and stamping of feet pictured here.


    I'm so tired, I'd love to do what we did yesterday, take turns sleeping all day.  BUT well, I'm a parent, and I guess thats out in the terms of reality.


    btw did you know that reality SUCKS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!


    In regards to the hospital visit.  I still haven't gotten my camera out of the car to show you what our week was like, maybe I'll get to it tonight.  (who knows around here)


    It was a long hard week as I'm sure you can imagine.  Watching them put the oxygen nodule on Rainee was the hardest part probably all week.  Its just tubing taped on her cheeks.  It wasn't painful, it helped her breathe.  But with all of both of my girls respitory stuff they've NEVER had to need oxygen other then what was in the mist tent.  So, this was a terribly hard first for me.  And she was up to two liters of oxygen.   She would have been transferred to Seattle if she'd made it to three.   Part of me wishes she would have, because nobody answered my HARD questions over the week.


    Today, I'm desperately hoping that Dr. W. will.  See the icky part of my doctors clinic, is yeah you can pick your doctor when you go in for normal visits, BUT when your in the hospital its russian roulette as to who sees you.  I.E. a different doctor each night.  And NONE of them read her chart before coming in.  They kept trying to take off/change meds that were ordered by the pulminologist.  Without KNOWING WHY.  And as you may imagine the mommy got MAD.


    I however did quite a good job of being this quiet and sane mommy who stood her ground.  All an act let me tell you, because each time I had to tell a doctor no.  I'd cry on Pam's shoulder (one of the nurses)  And then I'd get on the phone and do it some more to DH.  Gotta love the chronic sick kids life. 


    The highlight of my week (read sarcasm here)  Was when a baby was checked in next door with BAD respitory stuff, and his parents put him in the cage (hospital's idea of a crib)  and let him scream while they slept.  His sats kept dropping and dropping.  And the nurses and respitory therapists were panicky,  and he was hungry, and the parents slept.    I did NOT sleep that night, and it was all I could do to NOT go into that crib pick up the baby and start rocking him and singing to him.  Shoot I would have nursed him if I could have.   When a babys sats are at 85% you DO NOT NOT NOT let him scream.  Besides the fact that he's not in unfamiliar territory etc, etc, etc.


    Well because they couldn't get that poor baby stable they had to call the on call doctor at my clinic in at O dark 30.   He fussed with the baby for several hours.  And d'uh they gave him a bottle, snuggled with him and h is sats picked up, and he was much better.  (D'uh)  Okay, can you sense the stupidity of the parents.  Poor baby.


    Soooooooooooo   the doctor decides to visit me for his daily rounds at 7 am because of already being there.  Problem was is he too was angry at the parents next door.  And he walked into my room like a thunder cloud.  Welllllllll  I had a bone to pick with him 'cause he'd dropped a med that had been ordered the pulminologist.  So, I started calmly asking him why.  And he accused me of being angry.  Now I do angry well, fact I have a problem with anger, but I wasn't angry at that moment.  But of course the quickest way to make a woman mad is accuse them of being mad.    So I saw red.  I did NOT holler at him,  but I did get my point across, and kept myself 98% under control.  And he would NOT change the med back.  And I was ticked.  BUT  I decided to take it up with Dr. W. when the clinic was open.  So he headed out the door, and mommy (bad mommy)  said JERK!  just as he was closing the door.  I think he heard me, and it was wrong.  BUT OH MY did it feel good!!!!!!!!


    snicker


    Eventually things were resolved.  And without going over his head.  He decided (like it was his own idea)  to do what the pulminologist had ordered.  (good decision).  And I left Rainee crying in the cage told the nurse I was going for a walk.  And went out to my car and bawled.  Came back in less then five minutes later put my stone face on and became the good mommy again.   When I walked in he was all sweet, and professional, and said "I've decided to change the order."  I guess he had his bawl too while I was gone.  snicker


    I hate confronting and I did a lot of it this weekend.   The next morning (24 hours later)  When he was in a good mood, I was in a good mood, and Rainee was getting released.  I told him.  I have a comment to make to you.  I want you to hear it in the lightest of tones.  And then said this..."For future reference, the quickest way to make anybody angry is to tell them that they are angry.  I did a poll, and all the woman here agree.  The nurse was in on the conversation and she snickered and said oh definitely."  The doctor didn't apologize, but he had the grace to be sheepish, and all was resolved. 


    So, that's my battles with the doctor blogs.  Did I mention I also did battle with his wife?  It actually was my first battle.  And she was extremely gracious and apologetic about it.  She did NOT read Rainee's chart before coming in.  And I knew it.  hehehe.  And she said she was gonna drop a med, and without even thinking I said "No, your not."  (A year ago I NEVER NEVER NEVER would of been able to do that)  I explained why, and she agreed that was a good thing. 


    After she left I stewed about the fact that I KNEW she didn't read the chart.  So when she came around on evening rounds.  I just said calmly and sweetly it bothered me.  She apologized profusely said she had gotten sloppy, and things went well.   


    All of this goes to prove doctors are human, not gods.  and that concludes my doctors blog, the rainee saga continues....

  • Hey, I'm back.  Thanks Hope for telling people where I disappeared.  Hopefully most people figured it out. 


    I'm sorry I disappeared with out a note.  Trust me I was craving a lap top. 


    Anyhow  Rainee had RSV BADLY.  Her oxygen saturation rates kept dropping and she ended up on two liters of oxygen.  


    Even last night she ended up on a liter for awhile.  And why are we home.  Still trying to figure that out. 


    She does extremely well in the day time, and is hyper, happy and has figured out how to scoot ALL over the place.  She the doctor decided maybe her sats dropping at night is just what she does, and we didn't know it because of not monitoring her. 


    Tonight will tell.   And if I disappear again..you know where I went. 


    My kids need me, but I just had to delete the 200 e-mail messages I had from my e-mail lists, and blog.  Even though a short blog.


    I will update more later.  And I have pictures of Rainee's hospital stay for good measure. 

  • Good morning


    Its currently quiet, my kids haven't discovered I'm awake.   


    Mari did NOT want to sleep last night so he slept in our bed instead.  Our bed is TOO small for 3 bodies.    And then of course Rainee needed nursing which made 4 bodies.  I think I'm coveting Daylemilks new king size. 


    Rainee just puked.  Not reflux, big time puke.  I'm so desperately afraid she's sick.  Please pray.  Daddy's washing her up.  She can NOT NOT NOT afford to loose weight.  Life just keeps moving on....


    I have a couple pictures if anybody's intrested.  The first is of Mari when he got back from shopping with his big sis.  She took him to town and let him pick out his own birthday outfit.  hehe  And they had a hoot.   I wish I could have been a mouse in his pocket and seen it all.  


         


    And a very happy Mari on the slide. 


                  


    And what do we have here...a STUCK baby girl.  hehehehe  I think she's started moving.  But its kinda ineffecient, and she doesn't always get where she wants to. 

         


    And here we have our very lovable mutt...who decided to wash Rainee's face, and sit on her lap.  The problem...well the picture says it all.


                 


    So, I think I'm gonna be lazy today.   Both sinks are full of dishes, and there's like 5 loads of laundry to do.  But I have a good book, and I think I'm gonna go read it. 


    buy-bye

  • Good afternoon


    Guess what I did today?  Guess?  Anybody?


    I went to the doctors.    Gotta love this life.  It was time for Mari to have a check-up, and I scheduled some time to chat with Dr. Weller about Rainee's heart.  I love that man.    He was so gentle, and answered all my questions, and was just comforting.    He thinks that the heart and lung things are gonna end up being two DIFFERENT problems, and it will not clear up the lungs.   He gave the reasons for this, and I have to say it made sense.  But time will tell.  


    He said,  it looks like she just has two seperate Chronic conditions, and its just WRONG.  (his words)  I had to agree.    she has NOT gained any weight since my visit in childrens, actually lost a couple ounces.     So, I've added another thing to worry about Rainee to my list   


    Gonna start doing the watch tv thing when its time for Rainee to nurse, to see if she'll nurse a bit longer, and offering MUCH more.  Plus we're desperately trying to get her to eat solid food.  She hasn't  btw had a healthy check-up since she was 4 months old.    Dr. Weller was kinda snickering about this, but he did say that she needs one 'cause there are things that don't get covered.  Sooooo  I guess I'll call and schedule one tomorrow.  UGH UGH UGH UGH UGH!!!!


    DH finally balanced the check book.  (Long story)  And we're a LOT low on money at the moment, but we will survive, at least we didn't bounce anything.  And we have our tax return coming hopefully by the end of the week, so all we'll be fine.  If I can just convince DH to forgive himself, for letting us dip too much into the reserves. 


    Panic set in this afternoon when I realized Rainee wasn't gaining weight, and actually loosing.  I went back into my panic routine, anxiety, etc.    But, I'm slowly getting things back under control.    Anxiety is a frustrating thing.  


    One of the things that helps keep things under control is blogging, and I've been avoiding blogging, for some weird reason.  So gonna try hard to get back in the habit.  I have pictures of mari's party, but need to upload etc, not sure when I will get it done.....


    Thought for the day;  God KNIT Rainee together in my womb.  He KNEW what he was doing, he has a plan.  I just have NO idea what that plan is.  

  • Good morning   There's a bit of blue sky outside, and it looks like life is good.   


    But then you turn on the news, and you hear about the shuttle.  And you wonder which you should focus on.  I decided to pray for the shuttle family survivors, and move on. 


    But then I surfed about Rainee's heart stuff, and depressed myself again.     I'm learning that the why's to medical stuff, are so often unanswerable.  THAT SUCKS!   I want to fix things, to make sure it won't happen to anybody else, bla bla bla.  But that's not reality is it?   So I lay it in the hands of my loving Father, and move on.  Slowly, one step at a time.


    And then I have these delicious pictures to show you.  And their cute, and good.  And I think should I be focusing on good, when there's so much bad.  BUT YES, because bad and evil will win, if we can't have joy.  Sooooooooooooo   here we go.  (I hope )


    Do you find when your truely enjoying yourself you don't take that many pictures?  Cause your too busy enjoying.  I did take pictures, but when I looked through them, most of them didn't capture the day.  Or the joys of things like Mari Man staring at the recycled pop cans and wondering if he could play with them instead of looking at all the cool animals.  *grin*   Or Kaylin examining the drain in detail, and wondering what was under there.     


    Or the fact that Rainee can smile or wave, and breathed so good the day we went.     Or the lovely sunset that DH and I stood outside of the van and watched while we were riding on the ferry.  Or the fact that my kids were so well behaved, polite, respectful, and had so much fun.  it was a perfect day.   I've had a lot of those lately.....or maybe I'm just more aware of the days when everything goes right because there's been so many that have been so hard. 


    This monkey in this picture (which you can't see too well)  Was just fascinated with the kids.  He came right up to the glass and he had been quite aways away from it, and played, and tried to "touch" the kids through the glass.  We watched him forever.  The zoo was quite empty, so we had most of the exhibits to ourself, and the animals were extremely friendly.   We MUST go back in January again some day. 


        


    Mari Man (Jame's nickname)  favorite thing was the baby elephants.  The baby elephant would pick up dirty hay and throw it on his back.  He thought it was quite funny.  Little boys definitely love getting dirty.  Of course we were so busy enjoying watching, I didn't take a picture.  But I have the MEMORY, and that's more important. 


    We watched these guys for a long time.  And the daddy lion ROARED and ROARED and ROARED for us.  It was way cool. 


        


    And here we have HD talking to the monkey.  He was so cute.  (the monkey and the boy )

        


    And this was  HD's FAVORITEST animal.  He loves dragons and dinosaurs, and this is as close as your gonna get.    Its a Komodo Dragon, and way cool! 


        


    and then the lovely sunset DH and I watched outside the van, with the kids safely buckled in their carseats.  It was a good way to end the day.