June 23, 2008

• 

  My in-laws have come and gone.  It was a mostly good weekend.  Yvonne started getting a sore throat about an hour and a half before she arrived here, so she was dragging a bit.  And Rainee's health issues continued to increase...along with Kaylins.  So that drug Rob and I down, but I guess you can't have everything.

  So health stuff.  I haven't blogged about what is going on, cause I was well quite frankly in extreme denial and a bit of shock.  It started about two months ago for Rainee and it was a very slow hard to put a finger on it.  Rainee is extremely easy going.  Takes no very well, and NEVER cries.  One day she just started sobbing.  And she sobbed for almost an hour.  We rocked her, asked her if anything hurt, if she needed anything.  And the tears just went on and on.  Eventually we got her to drink some water, and it just switched off.

  We weren't sure what had gone on, and we moved on.  This scenario began repeating itself.  Once a week.  Once every four or five days.  And slowly increasing.  It wasn't because we had ever told her no about something.  Although once or twice that was a small component of it.  It was so bizarre, and life is busy enough that we just weren't able to really evaluate what was going on.  I set an appointment for a healthy check-up. (a month a way) and started paying a wee bit better attention.  And things continued to slide down-wards.  Now it was about once every-other day or so.  And I figured out about last Monday that if we gave her something to eat when she asked for it, it mellowed them.  And then I figured out if we gave her tums that sorta helped.  And then she started telling me her stomach hurt.  Pain for Rainee is so constant, that she has a hard time evaluating it.  So we began giving her some of Rob's otc tummy stuff at the first mention of pain, and mostly were dealing with it. 

  We had Rainee's healthy check-up and Dr Weller heard me say about her wanting to eat, and her tummy hurting and said she probably has an ulcer.  He looked at her last endoscopy and remembered it mentioned that there were signs in her stomache of a food allergy, and suggested we begin removing foods from her diet and experimenting.   I had wanted blood-work to check her thyroid, but was so distracted by the ulcer I forgot to ask.  I'm out of practice dealing with doctors. LOL.  So he is working out the paperwork for her referal to the GI clinic.  The normal alternative for a ulcer would be to give her prevacid.  She's been on it since she was one.  He's not at all comfy adding more meds until he knows what we're really dealing with.

  Okay, so Thursday-through today.  We continued to work on the basis that it was an ulcer, and began watching what she was eating.  We are solving some mysteries, but nothing is jumping out overnight.  The problem?  We've had two LONG crying jags when she hasn't eaten anything in quite a long while.  I mean long.  Forty-five minutes to an hour and a half.  Not screaming.  Just crying softly in between giving herself asthma.  We forced food on her and malox on her.  But she just cried until we could side-track her with math.  Yes I said math.  I've done more math in the last two days then I'd probably done in three weeks before that...maybe longer.  She finished two math work-books that I bought at Walmart, and I finally broke out her first grade math workbook and we worked on that.  Each time I allowed her to do math, she eventually calmed down.

  This child is SO not mine.  *snicker*

  So is it just tummy related?  I have no idea.  Is it exhausting definitely.  Is it scarey umm yeah.  And stressful thanks to it being Rainee just outstanding amounts of stress.

  For those of you who haven't been here since the beginning of Rainee...Rainee has a multitude of health issues that have kept us jumping...praying, and stressing since she was born and helicoptered to childrens.   Apnea, Birth defects in her lungs, trachea, and heart, Obstructive lung disease, Reflux, Gross motor delays that kept her from walking until she was 2.  The list goes on.    So this just stirs up all the fears, and yeah.  its not a lot of fun.

  In regards to Kaylin.  She got her blood checked.  And her thyroid is the WORST its ever been.  Its worse then mines ever been and mine has been very very bad.  So her energy is NONE existent.  And she spent a lot of the weekend staring blankly.  The good news is we up her dose, and eventually she'll get some of that energy back.  She just had her blood checked in March, and at that point her thyroid was high...and now its super duper low.  So strange. 

  And in other fronts.  Our washing machine is broken AGAIN.  Its only two months OLD.  *GROWLS*  And the door on our two year old baking stove just fell off.  Again.  And we had to have the DSL guy in to repair our dsl. 

  Its been a fuuuuuun week.    Rob and I have done a lot of deep breathing let me tell you. 

  

  In between times the weather was absolutely amazing this weekend.  And I even got into the river up to my waist.  The first time this season.  Its not quite as nice today, but still not bad, and I am so greatful for the bit of summer we got.  Especially while the in-laws were here. 

  • 1:34 pm
  • 5 Comments