December 8, 2004

  • Evening


    Went and spent a bunch of money at Walmart today.    And actually didn't feel that wiped out when I was done.   It was with *JUST*  Jeremiah so was rather fun.  LOL   The kids Christmas' are almost done.  Just need some stocking stuffers for Jamari which I will get at a different store.  Of course I will say this...and then think of three more things I need.  *snicker*


    Zeria held/played with Jeremiah for an hour today.  It was a excellent break. 


    Rainee absolutely loves Jeremiah.  And has taken to calling him Jerrymiah.  Its very cute.    She also likes to share with him....Rob caught this while I was napping the other day.  *giggles*


                       


    "Santa" is getting me a new camera for Christmas....I can't wait.  Mine is so not taking good indoor pictures these days.


    I actually posted on one board tonight.   And then I couldn't get in the next one.   I'll go try in a few minutes *if*  Jeremiah doesn't wake.  He is starting finally to let us put him down.  *cheers*     I don't mind holding him honest.  I enjoy it.  But 24/7 is a bit much.


    And now for the most exciting news this year.   Okay Jeremiah was probably that...but quite frankly I feel this ties with it.


    Drum roll please?


    I finally called the pulminologist yesterday.  And got a very quick return call.  (still amazed at how quick)  And she has said we can cancel the oxygen and the pulse oximeter for Rainee.


    Happy, Happy DAnce.  My sick baby is finally getting a break. 


    I'm still not sure I believe it somehow........


    So the orders have been faxed to Linncare and if they don't call tomorrow we will deliver them all to their office on Friday when Rob is off.


    Happy Happy Dance.


    What an amazing gift.


    No alarms in the middle of the night.  NO obsessing about what to do when her sats go down to 85 or lower.  Wow how will I handle that?


    I think quite frankly this is my real Christmas present, and birthday present, and, Valentines Day.  And you get the picture.  LOL


    This also as a side benefit means $350 extra a month in our budget.   That is a LOT of money thank you very much.


    Of course we have to pay them for the last two months first.  We've been playing catch-up since Rob's leg.    But 'tis okay.  Last month will be paid on Friday.   And the next one will be paid January first or so.


    And then


    NO MORE LINNCARE.


    NO MORE!


    Thank you God!


    God is good.


    All the time.


    All the time


    God is good.


    I've said that for two and a half years.....and quite frankly many days was trying to convince myself.  But today it feels right.   God IS good.

Comments (10)

  • praise God for rainee! awesome!

  • :sunny: Wow, wonderful news for Rainee and all of you too! Jeremiah is so cute

  • "Jerrymiah" is just GORGEOUS!!  How old is he?  Beeeautiful.
    That's fantastic news for Rainee!!!

  • That's great news!  BRILLIANT!

    I've jsut had to call in a prescription for my youngest today.  Found out last week after he'd finished a course of penicillin based antibiotics that  he's allergic!!!!  Consequently the abcess on his tooth has come back.  He's not i any pain, so I'm sending him to school and I will fetch the prescription later.

  • I'm so glad to hear that about little Rainee. I know how hard it is to have to live with asthma. I saw an article in the KC Star yesterday about a vaccine that is being researched that not only takes the asthma away but repairs the damage the lungs have suffered over the years! Yes, God is good! I want to be in the research trials. If it wasn't for the asthma I could do so much!

    I'm happy things are looking up. The picture is darling. He's just such a big boy! Merry Christmas Dear!

  • It kinda looks like Jeremiah is thinking, 'WHAT'S THAT!?!?!?!' LOL!!

    Great news about Rainee!  :goodjob:

  • How did I miss all of your latest entries? Aagh!

    But God is very good and it was so wonderful to read this latest entry and hear all the good news. *hugs*

  • What a handsome baby boy you have there!  Praise God for your good news!  What a blessing. And a Christmas present too! 

  • Nice to hear from you. I thought I'd been struck off! Congrats on your adorable jerry-myah. This hard days will improve soon, I'm sure. Tahts wonderful news about Miss Rainee - I look forwward to hearing how your fmaily is going. Take care, take it easy and rest up! TP

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