September 12, 2003

• Life ain't it grand?

  
  

  I'm actually feeling more up then I have in months.  Go figure.

  
  

  I have been off my paxil for almost two weeks.  And I'm beginning to suspect it was sapping some energy. 

  
  

  I have two mostly full nights of sleep under my belt which is always good.

  
  

  And I stood up for Rainee and myself yesterday and got good results in return.  Even if I did almost cry when I was being agressive.

  
  

  I have a lovely pulminologist who has worked with Rainee since she was 3 months old.  She is literally a gift from God.  She has treated me with respect, gone out of her way to defend/treat Rainee.  And in the middle of clinic walked two floors down to comfort me when I found out about Rainee's heart. 

  
  

  There is another woman pulmo I think is probably just as good, but Dr. R. is wonderful and I see no reason to change.

  
  

  There are several male doctors that are just butts.  The one is the one I dealt with in June who I was ready to strangle after the last sleep study.

  
  

  Well, so I show up to the appointment and instead of Dr. R. who I'd scheduled with there was Dr. G.  a Major pain in the butt.  I drove 4 hours, spent money we really, really don't have, and he was in the room with me less then ten minutes.  Did NOT give me time to ask my questions and then was gone.  I did not come here for this.  HE said he'd be right back, so I figured I'd missed something.  He didn't come back, instead the nurse did to discharge me.

  
  

  I very calmly and quietly told her that my visit had been a complete waste of time.  That Dr. G. said he was coming back, and I was NOT coming back to Childrens as I felt like it was a waste of my time, money, and energy.  Dr. W. at home could do more then Dr. G did.  She was extremely sweet and sympathetic.  She said she'd go find out what happened to Dr. R. 

  
  

  She did, apparently a schedule change happened and Chad the wonderful receptionist forgot to call.  He's usually extremely with it, so he must have been having a bad day or something.   Anyhow they went above and beyond and paged Dr. R.  She was in the hospital and on-call.  She had a quick bronch she had to do, and then she said she could visit with me all day if she had to. 

  
  

  She headed to the bronch and RAinee napped in my arms while I read a book.  less then 35 minutes later she was back.  And she answered all my questions and then some.  She explained the last sleep study to me.  And said that RAinee had had 39 not-breathing incidents in a 6 hour study.  And this was an "improvement" but they were obviously concerened. 

  
  

  She'd just done a in-house training with the sleep doctor that day who'd stressed the role tonsils play.  Dr. G had already looked at Rainee's tonsils,  but wasn't willing to make any decisions without Dr. R. being there.  She trusted Dr. G's assessment of size.  I guess there quite largish, and her airways are quite small.  Sometimes central apnea events happen because of obstructive (blocking passage way events)  They would like to remove this option.  There not promising miracles.  But oy,  if it would get Rainee off oxygen it would be worth its weight in gold!

  
  

  So, its a day surgery, plus a visit to meet the ENT.  We'll find out in the next week or so when etc.    I hate to put her through the anesthesia again,  but I also hate the screaming and covering she does of her nose when she sees the cannula coming at her.  Sooooooo the lesser of the evils. 

  
  

  We discussed that Rainee will be the way she is breathing ways for a long time, and as long as she was growing, and we were rescuing her, she felt like she's on the right track.  I was comforted by Dr. R not blowing me off, and a plan.  And for once being agressive paid off.

  
  

  Rob congratulated me when he heard I'd stood up for myself and gotten good results.  LOL. 

  
  

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  On other fronts.  I'm so enjoying my computer right now.  LOL  Its great to be home.  And gonna be a good long while before I can advocate for another run to Pocatello.  My kids are content and playing nicely, the house is reasonably clean, and home has never looked so NICE!  If the grands want to see their grandkids they can just come this way thank you very much.  And if DH wants to seee his grandparents I think I'll buy him airplane tickets! 

  
  

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  Role-playing comments ignore if your not intrested.  ROFL

  
  

  Catherine grew up in the last 24-hours.  Its been amazing to write, and I'm still shocked how much fun its been.     I did a lot of soul-searching as to what I'd be willing to write, etc before I made this decision.  And I feel extremely peaceful about it.  And astounded as to how much fun its all been.     Of course now this means she has to get used to Glory's majorly wacky family *snicker*  But hey its all fun right????  

  
  

  Oh and btw Jen....I think DH would love to know how to work the "unlock" charm.  snicker.

  
  

  Thanks for playing with me,  it was a much needed break from reality. 

  
  

  And now for Catherine's birthday.    Waits patiently to be suprised.  *snicker*

  
  

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  I'll upload pictures tomorrow.  But had trouble with my server this morning, and no time to do it right now.

  
  

  Have a great day all!

  • 12:53 pm
  • 3 Comments