April 27, 2003

  • Good morning


    Well  vacation continues on.  So my net time is at a all time low.  We watched Star Wars Attack of the Clones last night.  And I read a book most of the day while DH and the kiddos played outside.


    The vacation stuff from camping just stayed on the table.  bwaha.  This morning DH put most of it away, and is actually doing the bathing routine 'cause he's usually not here to do it and is giving me a break. 


    The vacation (camping part of it) was actually quite nice.  Nothing spectacular happened I just finally got a bit of the burden I've been carrying on my shoulders since Rainee's last hospital stay to roll off a bit.  I'm not sure why maybe just time, or not doing anything extra.  It just left a bit and that made it nice.


    It also helped in that my 'ils have a chronically sick adult child.  Who has been that way most of his life.  (He has diabetes and substantial asthma).  They understood our fears and worrys for Rainee and gave us the ability to discuss them with them without condemnation.  


    We did a lot of swimming in the pool, and quite enjoyed it.  The big kids learned to swim the width of the pool without their water-wings.  The medium sized kids reduced their fear of the water (they haven't had as much pool time do to all of Rainee's crap the last year).  And Rainee well she LOOOOOOOOOOOOOVES the pool.  With a capital L.  She played and played and played and giggled and oh my was she fun to watch and snuggle with.


    We did some touristing. And some camp-fire watching.  And all in all it was what a vacation should be.


    With the exception of course the oxygen, apnea monitor, and pulse ox we came with.  It hung over our shoulders a bit.  As well as the info from the Dr. that she wants us to re-do the sleep study in two months.  And that they are doing the Ph probe study for reflux at that time.  I'm so tired of putting Rainee through crap like that.   Yeah their non-invasive, but you get prodded, and the pile of residents pile in and out.  And you answer 100 million questions about your child, and are reminded a 1000 trillion times that things aren't normal with your child.  And it SUCKS!


    But, I guess its our new life and I will eventually learn to deal if not accept it.


    I have a few pictures, but haven't uploaded them off my camera yet, so maybe sometime soon.


    I visited a few sites, but didn't leave comments I'm sorry I'll get back into the swing of things when dh returns to work.

Comments (5)

Comments are closed.

Post a Comment