Okay,  I tried to edit my xanga site, and something went haywire, and now xanga won't let me do anything.  So please forgive the way it looks at the moment,  I'll fix it when xanga wakes up!

Good morning

Well life goes back to normal.  bwahahahaha

Raineebug is still chasing that cat.  Some day its gonna get caught, and man is she (the cat) gonna be shocked!

I rigged a side-car from Rainee's crib last night.  I think this is gonna work.  Even if she never sleeps at least she can do it where I can still roll over and reach her, or just plain roll over without the logistics of what to do with the baby.  Its working quite nicely.  I can just drop her in bed after her 1000th nurse of the night and go back to sleep.

So with more details of my oh-so-lovely Thursday visit to the pulminologist.  We are gonna be doing two more tests on Rainee.  *sigh*  And there's a good possiblity they will remove her tonsils.  They are suspicious that this is why her sats drop at night.  The pulminologist was not happy when she heard that.  So they are gonna do a sleep evaluation.  Where they put bunches of probes on her and evaluate her sleep~~or should I say lack there of. 

The second test will be infant lung function test.   It will require her being under anesthetic (again)  But supposedly I at least get to stay with her this time.  Oh, I so hope so, I hate having to walk away from her for surgery.    This test will evaluate how much volume she's actually pushing out of her lungs.  They will put a vest on her which will act relatively like a blood pressure cough, and 'cause her to breathe in and out to see how much  volume she's producing etc. 

I'm starting to wonder how many tests she's gonna do before we say NO more.  But she's not healthy, and well it seems like something has to give.  *sigh*

With our luck the tests will be scheduled during our supposed vacation (again)  We really want this vacation, so prayers that it could be scheduled BEFORE the middle of April would be nice.

Oh yes, and prayers that she would do her sat drop tricks during the sleep test so they can evaluate for themselves would also be appreciated.   Its kinda like taking a car thats making a "weird" sound, and the sound going away.  I'd really like them to see it for themselves. 

Well, I went into town to pick up dh's scripts yesterday and my card was out of my wallet, so gotta load the kiddos up and get it today.  It WAS nice, and was thinking of a park, but now its pouring, so maybe we'll just turn around and come back home. 

My bathroom is probably looking like a tornado hit it~~the kiddos are "brushing" their teeth right now.  This is a half hour long process where the sink runs the whole time if they think they can get away with it. 

Okay closing with a picture I took at the beach when we went Tuesday.  It was so beautiful there.  I have more, but will upload them as I have time.

Thanks for the prayers once again, it sure helped to know many people were praying while we waited!

T

God is great, and greatly to be praised.

Rainee does not have Cystic Fibrosis.  We can breathe.

Now we just have to figure out how to put some weight on the pigeon.  We're still waiting for the results of her thyroid tests.  Low-thyroid I can deal with, CF scared the crap out of me

When Rob called this morning and they told him the results he said,  Could you say that again please.  It took me most of the day to come down off my fear.

I'm still kinda exhausted from yesterday, and the fear and worrys of today.  So, the blog will end here.  Thanks for your prayers. 

Update while I was posting this my pediatrician finally called back.  He finally got a chance to look at Kaylin's growth chart.  Rainee's and Kaylin's are identical.  They both dropped points between 6 months to a year old.  The EXACT amount of points.  Sooooo pbbbbbbbbbbbt to my pulminologist and scaring the crap out of me.  I tried to tell her this, but with all of Rainee's other health issues she freaked on me.  So now I have knowledge that my babies just do this.  We still have to watch it as they get skinny fast.    But I'm not gonna obsess, and I'm NOT NOT NOT stuffing the pediasure down her that the  diatician was so convinced she needed.

First ingredient~~water,  Second ingredient sugar.  Oh yeah thats healthy~~but its recommended by pediatricians so it must be good.  bwahahaha

Have my ped's permission to ditch it.   WILL do!

Well, it was a day.

And I'm kinda numb, and scared.

I know there is a war going on, but it is so small in my life right now if thats wrong~~shoot me.

My daughter has not gained weight, or grown in 6 months.  They freaked. 

We did a Cystic Fibrosis sweat test today.  And I don't know the results.  I'm scared (again)

We have two more sets of anethesized tests she's gonna have to do (hopefully they can both be done in one trip) 

There's a good possiblity there gonna want to take Rainee's tonsils out~~I know minor, but poor lamb has had way too many things done to her!

They did a blood draw to check her thyroid today.  I wanted to cry right along with her. 

I just may go and cry somewhere quietly tonight.  Or go find some wacky thing to post at the Dragon Inn. 

Or both. 

Prayers appreciated while we wait for the results would be great.

We didn't do anything fun today, we ended up being at the hospital until 1:00 pm, and didn't get home here until 5:00.  So, all we did was hang around in the hospital.  AII YEE, next time my lovely DH will take a day off, and stay with the kiddos.  I can NOT take them with me again, its just too much for them, and me. 

HMMMM xanga doesn't like me and won't let me upload pictures, and I have some really purdy ones.  Oh well.

I'm gonna be awol most of tomorrow,  so drag my charries along on the board if need be.  I'm taking my munchies over to Seattle, so Rainee can have her pulminologist appointment. 

I would have loved to leave some munchikins behind, but they have just been left too much lately.  So my sis is coming with me to play with them in the waiting room, and then we'll go to a really cool park I know if its nice, or to a mall if its not nice to get wiggles out. 

Rainee appt. is just a check-up.  I'm hoping they up her mainteance med, 'cause we're still rescuing her at least twice a day, and well it gettin' old.   We shall see though.

I'm tired, and kinda blog-less, my pictures we're gonna me my inspiration, and meanie xanga won't let me, so have a good day all.

Random thoughts coming from crazy lady. ROFL

Rainee has spent a great deal of her morning chasing the kitty cat.  Its been immensely funny.  All she can do is scoot.  So she scoots as fast as she can growling and talking to the kitty the whole time.  The kitty stays still just in time for her to reach and grab its tail, and off the cat goes.  *grin*  She's never gonna win, but hey she's having fun. 

Depression/anxiety.  Have you had a friend who struggles with it.  If you do give them a big hug for me today.  It is a never ending battle of ups & downs.  And just when you think you've gotten the wretched thing beat, a BIG down comes along and slaps you in the face.   Its  a constant struggle/war/exhaustion.  And my family is along for the ride.  My dh is so gracious in dealing with it, much more gracious then I would probably be. 

One step at a time.

Today it is GORGEOUS outside, and I think we're probably gonna go somewhere and play in it.

DH and I choose to live in a 100 year old house with MANY idiosyncresies.  We choose to have a lawn that has holes in it, and a driveway thats filled with mud.  Its not quite white trash, but some days it goes over the border ROFL.  We have old cars with 100,000 plus miles on them.  All so we can play together.  It's a priority to both of us to play, and we have a lot of fun doing it.  Hikes, bike rides, explorations, and mud puddles,  God made this world we're gonna enjoy it!

Onto one last random thought.  Having 5 kids is proving to be a challenge in a area I didn't anticipate somehow.  Its the constant knowledge that my kids are an exhaustion and burden to other people when I go somewhere with them.  Its kinda hard to explain.  Its just that people give me this look like "Do you have to have them here."   And its irritating as heck.   I'm still working through this irritation, and trying to learn how to handle it.   My 5 year old wants me to stay at birthday parties with her still, she gets nervous and shy and scared.  She has anxiety attacks for crying out loud.  Most moms would just stay.  I however come with 4 other children.  So do I pay a baby sitter that can stay with the other kiddos.  Well thats not a good option I'd go broke.    Other moms would just bring their one toddler.  Well I don't have one toddler I have 2 toddlers, one scooter, and one preschooler.   And I feel like I need to apologize for it.  I did NOT choose this life, it was chosen for me, and I still need to be a mom to all of my kiddos in the process.    Trying to figure out a solution here, but I don't see one yet. 

Kids and water?????

Why do kids and water attract to each other so easily?  My favorite thing to do when I was growing up was get muddy.  Even at the age of 14 the highlight was when it had just rained and all the puddles were full.  We'd get our beat-up 3 wheeler ATV out, and go puddle-jumping.  When I went to college (in Alberta) it rarely rained the time of the year so the rare time it would rain, my best friend and I would go walking in it and puddle jumping.  I still find it hard to resist a good puddle.  ROFL

And I've apparently passed this onto my kiddos.  'Cause here's what they did yesterday afternoon.  No most moms would have been horrified.  My first response was don't throw mud.  My second response was~~I'll be right back, and I went and got the camera and camcorder.  bwahaha

The best picture was one that got missed (of course)  By accident or on purpose I'm not really sure MariMan decided to take a dive into this 1 foot deep mud-puddle.  He came up quite shocked.  LOL

Kaylin beings she's the one whose truely got my genes.  Was of course the first one to attempt to sit in it.  And she ended up sitting in it for a good long while like it was a bath tub.  Its NOT its like 50 here.  But well, ummm their kids.  And kids and mud, and water are just natural magnets. 

MariMan of course had to copy big sister.  And soon joined her.  OM did they have fun.  And YUCKY do I have a nasty load of laundry to do.  At one point HD lost his pants in the mud.  Quite literally.  He jumped in, jumped out, and the pants remained behind in their lovely ditch.   So after he fished them out he started washing them for me.  Yep, he washed them in the mud puddle wasn't that helpful?? bwahaha

So, I guess this all goes to say I'm more then slightly insane. snicker  Or my kids are.

The worst thing?  It was all I could to not join them.  It looked like so much fun.  But some small vestule of my adulthood told me that would be so cold, and I'd be muddy, and I'd make a mess of my house, and so I resisted.  And how stupid was that.  Dirt washes, but the puddles will soon be gone.  I think next time.  I'm gonna jump in!!

Good morning

Gonna head out with the kiddos to get breaky at McD's.  I actually LIKE their breakfast.  And I'll let them play in the playland for awhile, and then we'll go to Walmart to pick up a birthday pressie for my niece whose gonna be 7 tomorrow. 

Yesterday after DH let me sleep in until 9 (nice dh )  We decided to go for a drive.  First we went into town and got mommy some McD's breaky (I did say I liked it)  And then we decided to drive out to Neah Bay.  Neah Bay btw is LITERALLY the end of the world.  It is the farthest most NW point of the continental US.  The town itself is a typical Indian Reservation.  Enough said.    But the view around it is GORGEOUS.

Had some intresting discussions about Native Americans.  (Though my friend whose married to an Indian refers to him as Indian ROFL)  And my kiddos are having a hard time seperating Indians as seen on Peter Pan from Indians in reality (there close friends CJ and Nakota)  I'm gonna have to e-mail my friend 'cause she needs a good laugh over the stupid things they said in trying to teach them reality.  hehehe 

Last summer dh took the kiddos to a co-workers house who is extremely proud of his native heritage and has a tee pee in his yard.  HD was quite impressed and while in it says...."I know what Indians do they go like this  and put his hand over his mouth and started doing the ai-yi-yi-yi sound"  Fortunately John had a sense of humour.  Teaching a child to be PC is a very intresting job.  So sitting in the grocery parking lot yesterday Princess says EXTREMELY loudly.  "Mom, are there still Indians in this world?"  (mom has window open, and we're sitting on a Res)   "Yes, Princess, you know they are remember CJ, and Nakota, and Kira, they are your friends and they are Indian."  "Oh,"  Again Loudly.  "MOM WHATS A INDIAN RESERVATION?"   Okay, I give up.  So much for discretion in this child ROFL.

So when we were driving again, we did a history lesson.  And I HATE giving those kinda history lessons.  Where so much wrong was done, and yet you understand some of the whys, but its not justified, etc, etc.  Its kinda like trying to teach My AA kids about slavery.  *sigh*  I think its time to have Peg & Sam over for dinner, and have Sam give us a homesschool lesson on Indians from his perspective.  He's done it before for people, he's actually a very good teacher. 

Okay off that tangent.  I have pictures of our exploration.  Wanta see?  Their extremely beautiful.  (And nope I'm not prejudice)  So here's the end of the world, fortunately its beautiful.

I should shrink that picture, but its too gorgeous to shrink, so there

I played with this one of the boys a bit.  So its blurry on purpose.  Not sure if I like what I did now or not.    They had so much fun running around yesterday. 

The next picture was quite a pleasure.  On the way back from the beach we saw some Trumpeter Swans swimming in the river.  They of course did NOT want their pictures taken, so this was the best of what I took. 

And here's the Princess trying to build a sand castle.  Shortly after this picture was taken a wave decided she didn't need to build right there, and it washed away.  OOPS. 

And one last picture of everybody enjoying the beach.  I was having so much fun with the fact that you could see everybodys reflections in the sand.  Raineebug btw was in a sling in my arms.  Which is why you can't see her in any pictures.  I had DH take one of me, but it was ewwy, so sorry you ain't seein me today.  LOL

Good evening. 

Today~

The rain, rain, rain, came down down down, the rushing, roaring rivers.   (Whinnie the Pooh)

It poured, and poured, and poured.  When dh got home at 11:30 last night he had to re-dig a ditch as the water was headed underneath our house. 

The wind blew, and it was freaky.  And our french doors blewwwwww open before dh got home, and scared the beejeebers out of me.  I had an anxiety attack over the weather which I've NEVER done before.  *sigh*  I think it had to do with the ammount of sugar I've been eating lately.  So, I'm taking measures to cut it down.

Today, we played in the ditches some more.  As the river/creek/flood plain was going down our driveway onto the county road.   

The kiddos had a riot.  They were racing their boats down it.  Keeping in mind we don't have a creek on our property except for 3 weekends a year.  LOL.  

The county finally had to come out and dig a ditch in our driveway because of the water going all over the county road.  So now we have this lovely hole in our driveway.  Tomorrow dh is gonna call the county and see if we can get a culvert put in.  The men suggested if we paid for the culvert the county would install it.  After all the digging, water sloshing we've done it would definitely be worth it.

Though gotta admit.  I sure do LOVE playing in the ditches.  I kept sneaking out and leaving the kids to go play in the puddles.  *grin*  I still have some kid in me after all.

I'm doing much better today then I did yesterday.  I have an awesome DH btw.  He prayed for me, and let me hold him tight, and gave me a rub down 'til I got myself calm.  GOOD man!