Good afternoon......and today's blog is brought to you by the roller coaster. 
Or could be brought to you by the Racing mini-van. Sorry this one doesn't race, still learning how to do animated graphics.
Anyhoo last night was AWFUL. We slept in small stages interrupted by Rainee waking crying wheezing nursing and small bits of sleep. I *think* thats the third night of her essentially not sleeping. But don't quote me on that I'm sleep deprived. *snicker*
Rob listened to her lungs this morning and wanted me to take her back to the doctor 'cause the prednisilone did NOT clear things up. And doctor had told us to come back if she wasn't clear by then. So, I staggered out of the bedroom at 8:30 this morning after my very very little sleep desperately rubbings my eyes, and trying to wake up. Got online for a bit while nursing Midgeling. She NEED Mommy moilkie! At 9 Rob reminded me to call. Got offline called, they can get me in in 45 minutes. Haven't gotten dressed or anything. Put hat on my head grab Rainee and run out. (The hat was to hide bedhead. )
Today was SUPPOSED to be my break day as sis was gonna be here. So she came and Rob got her working/taking care of kids and headed to work.
Get into the doctor quite quickly. And he is immediate receptive to things aren't right. We discuss options. And decide to switch off zantac on to prevacid and see if its the reflux that's making things worse. He said that my suggestion of allergys was a good way to go if the prevacid doesn't work, but he wanted to add one new drug at a time. (I understood and appreciated this.) Then he got out the scope and started listening. Only he was listening in the wrong place. I had a bad feeling I knew what was coming.
Two weeks ago when all this bad breathing started up again he had heard a heart murmur. I didn't mention it, because I was living in denial. I didn't want to think about it, and was too caught up with her asthma. NOBODY had ever heard it before. And now all of a sudden it was there. He suggested we see a cardiologist in April when he came for a visit, and suspected all it meant was she would need antibiotics when she had dental work. Being's that this was Rainee, I was pretty sure something would be complicated. After that visit each doctor heard the murmur. Dr. H heard it AFTER reading that there was one. She was quite suprised she hadn't noticed it before (she's our main doctor) Dr. M on Tuesday heard it quite loudly and he had NOT read in her charts about it, and was somewhat concerned. Last night I finally told a friend about the murmur, and told her I was concerned that it seemed to be getting louder, to go from nobody noticing it, to everybody noticing it and commenting seemed kinda weird. But, I was still in DeNIAL too focused on the fact that her breathing is HORRID.
So, today I just kinda KNEW that that was what Dr. W. was hearing. I was right. He took the 'scope off, and told me her murmur had gotten much louder (in only 2 weeks) And he wanted to go get her x-rayed. He said her lungs were moderately bad, and to keep on keeping on hoping that the prevacid would work. I had my doubts about the prevacid, but at least we had a plan.
We went to the hospital to get the x-rays. Waiting in the entry-way I was nervous, but Rainee and I played. She said her first word. 
No! 
I have 5 witnesses all the people in the waiting room snicker. They all agreed it was a word. This was cute, and a big distraction. 
X-rays went ok. If you've ever had a x-ray done to a infant there kinda torture chamber. They put them in this plexi-glass bubble with their hands trapped over their head to get good view of lungs/heart. The last time we did it she SCREAMED cold blooded murder it was devastating to me. But since then I've introduced the bink, just because of this kinda thing. Anyhoo with the bink in her mouth, and mommy singing Jesus Loves me, she took it like a trooper.
I had called Rob to tell him what was going on. Dr. W. told me he'd call with the results at lunch time. It was 11:00 I decided to QUICKLY grab breakfast. I know it was basically lunch time. So God provided for me a good breakfast in a record time at one of my favorite restaurants. I raced out of there headed to the pharmacist got the stuff there quickly. And got home by noon. I wanted to be there for the call, not getting the info second hand from my sis.
I got home about 12:10 phew doctor hadn't called yet. I wanted to tell my mom about the icky things that were going on. So I called her and told her. Got off the phone for all of 30 seconds and the doctor called (he was prompt ) The GOOD news her heart wasn't enlarged, so we'll wait until the cardiologist appointment. Oh btw while I was at the clinic the doctor called over to Childrens Hospital and has gotten a cardiologist appointment in Seattle the same day as the pulminologist. He is extremely concerned about all of this. You do NOT get specialist appointments that fast I KNOW btdt before. Bad news; Her lungs weren't moderate, she has pneumonia he was quite suprised about this. I WAS NOT. But then I live with her, and she always amazingly clears up in the doctors office. He said he'd call a script in for zithromax. UGH, town is 20 minutes away, and my sis is leaving soon. This means trip to town with ALL in tow. Will this day never end???????
I called my mom back told her the results, called Rob (had to wait a few as he was busy) told him the results. Took a very short nap while sis was still here. And headed into town to get the munchie's second med of the day. Today out of pocket she cost us $60 not counting the x-rays. She a spendy baby gurl. But she's SO awesome.
Took the kids into town, and decided to do ONE of the errands I was supposed to do earlier. (The grocery store) not a big grocery shopping, just a couple items we were low on (especially the flour) (I think I was running on adrenniline, or stupidity factor or somethin'.
Did the grocery store was mostly successful, mind you I had HD trapped in the cart which made a BIG difference. Princess took a bite out of one of the doughnuts when mommy wasn't lookin' (I gave them to her cause I *thought* she could be trusted )
Went and got the meds. Their not taking debit cards. the machine is broke. i'm out of checks. GROWL. Finally used credit card just so this day could end bwahahahahahaha. Its 4:17. And that is my day. This is my first real break today. Frozen pizza for dinner tonight can u guess why?
The miracles in today were. They took the x-rays for her heart, but found the problem with her lungs. He would NOT have taken x-rays otherwise. When I was truely stressed between the doctor and the x-rays. I ran into my midwife who is a lovely Christian. She saw me stopped by my van, and visited with me for a bit. It was soooooo nice to have somebody who KNOWS the crap thats' gone on, and understands the medical ramifications. God's small blessings. The blessing that I made it home in time *just* to talk to the doctor firsthand rather then second hand. The blessing my sis was already scheduled to work today. The blessing I had money to buy pizza instead of try to cook. The blessing that I have sattelite dish so the kids can watch tv until bedtime *Grin* I just can't deal with them tonite bwahaha
The fear is WHAT is wrong with dd's heart. I'm still kinda in denial about it, I just can't deal with much more. I guess I'll put that part on hold until the cardiologist appointment next Thursday.
Pray please.
Today is brought to you by the gurls. First we have Midge cuddling with her baby doll. I took this yesterday while I was blogging LOL. She just had to be memorialized. She btw is not extremely near-sighted, he (the doc) said if she was it was a small thing, and not fixable yet. So, that is taken care of.
