January 24, 2003

• Good afternoon.    Its been a whirlwhind day with very little time to think.  This may or may not have been a good thing.   (still deciding )  I had to go big grocery shopping today, but my kids were so clingy I ended up taking dh and them with me.  Of course as you may imagine it was not exactly fun.     But we got what we needed, and didn't kill a kid or anything, so that's always good. 

  
  

  Tracie said this in the comments about Rainee's PDA <quote>

  
  

  I'm sorry and sad and pleased all at once...</quote>   That sums up the way I'm feeling pretty much.  I'm sad that Raineebug isn't whole and "normal" physically.  I'm sad and angry about it.  A lot of me is in denial about it still.  (First stage of grief right?)  And I'm also hugely greatful and hopeful that this will mean she starts becoming healthier.   

  
  

  The surgeons have not called yet today.  If they don't call by the end of Monday I will start doing the mother bear routine and find out why.  Could you please pray that they DO call, so I don't have to do that routine.  I hate the phone, and I'm tired of dealing with that kinda thing. 

  
  

  Did I mention that I LOVE my pulminologist.  I'm so greatful for her.  She had heard the murmur at the morning appointment (as I blogged yesterday)  Anyhoo in the afternoon the food therapist walked past me and asked how things were going.  I told her briefly.  She said Oh, I'm sorry, but I'm glad they can fix it (bla-bla-bla )  I was pleased she was that friendly.  Anyhow less then 5 minutes later.  The pulminologist came down from two floors up and stood in the hall way and talked with me for over 5 minutes to discuss what I had learned, told me to call them when I found out when the surgery was.  I'm so sorry your going through this etc.  She stepped out of her busy schedule to come find me.  I was so tickled with that.     Definitely she is a Godsend.

  
  

  In regards to the x-ray stuff that I talked about just before I went.  I talked to the pulminologist about that.  And she said adult radiologists do NOT read kid x-rays very well.  And in reviewing the x-rays she felt that he went overkill.  And yes their was something mild wrong in her lungs each x-ray, but pneumonia may/may not have been a overkill diagnosis.  So that made me feel a *bit* better about my ped clinic. 

  
  

  Found a baby food grinder for Rainee.  And puried the soup we had for dinner tonight.  She ate it.  And a LOT of it.  (a lot for her )  And then I tried some sweet stuff and she was NOT into that at all, just spit it up.  So I'm thinking she's a salty baby not a sweet one.  Hopefully we can get a bit of weight on her now. 

  
  

  I'm not super-worried about the fact that she hasn't gained weight, Kaylin didn't at this age either.  Except I do know that she could use some extra ounces to loose when she goes through the procedure etc, so will proceed accordingly.

  
  

  Okay, that's my life up to date.  Oh I had a LOVELY time at Barnes & Nobels on Wednesday.  Was there for over 2 hours.  Like candy to this mommy.  And Rainee was quite well behaved, and enjoyed looking at all the books too.   I got a bunch of kids books for decent prices (2 for each kid)  they wanted mommy to bring something home for them   And I got a couple mommy books (Anne McCaffrey books of course )  Finished collecting the Dragons of Pern series now.   And starting on the Freedom series.    

  
  

  Also went into a lovely store to smile at.  Pottery Barns Kid storage.  WAy cool stuff, extremely pricy, and NOT kid durable.  But fun to look. 

  • 8:07 pm
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