January 21, 2003

  • Good morning.  I'm typing holding Raineebug, so if there's some extra letters, or lack of letters blame her


    It is incredibly foggy outside.  And I wanted to do something fun with the kids.  Unfortunately I can NOT decide what that *fun* thing was.  snicker.  I'm sure we will come up with something.  (thinking, thinking, thinking)


    So here's the deal about Rainee.  Ever since she was born we've been asking about meconium aspiration.   But everybody just kind of shrugged their shoulders, or didn't answer the question.  When she was helicoptered to Seattle they told me she had "spots" on her lungs, and possible seizures.  Of course I was drugged and Rob was puking so they *might* have told me more, but I do NOT think so.  My parents were there, and that's all they heard too.    When I first went to the pulminologist in August we got all the Hospital records.  There was NOTHING about any of that.  Well, so the doctor on Friday asked us to pick up the most recent x-rays.  I of course opened it to look inside and there were 4 radiology reports.   On the radiology report it said she had severe meconium aspiration and neonatal pneumonia.  These were things that SHOULD have had something done about them.  They did give her antibiotics at Childrens.  But we were never informed about it, and when we asked for her records this information was "accidentally" left out?  We are NOT the suing kind.  But we ARE ticked.  We need to know everything in order to put the puzzle of Rainee's health together. 


    Okay fast forward.  To the first time she had x-rays when I was alert.  That was when she was 3 months old or so.  (Its all in blog form somewhere)  Anyhoo after the x-rays the doctor called me and said her bronchials were swollen, and it would be okay if she did the albuterol.   The radiology report?  she had pneumnia.  We were not told this, and they did not treat it.   Every single report said the same thing.  She had pneumonia.  She's been x-rayed 4 times, and never treated for it, except this last time.  And the antibiotics (surprise, suprise worked great)  And she's almost 100% better.    So, why the heck are the doctors not doing anything?  I have NO idea.  And I'm completely and totally frustrated.  


    I would LIKE to switch doctors, BUT there's not much options around here.  


    The *good* news.  Is the doctor I DO like at the clinic DID tell me the RIGHT information about the x-rays.  So maybe I should just stick to him, and ignore the other information. 


    BUT WHY did we get to see this information now?  Decisions, decisions.


    I'm headed over tomorrow to do the pulminologist, and cardiologist, continuing to pray that this WILL give us some good answers.

Comments (3)

  • Hmmmm very strange that they'd not tell you all these things as they were happening.  My question is "WHY?!"  - I'm sure yours is too!!  Good luck!

  • Oh man... I still can't believe this is happening.  I'm so sorry for you guys and for precious little Rainee!!  I know you're not "suing folks" but at the same time, their incompetence has created a chronic condition for your little one, and perhaps they should be held accountable financially.  Maybe if they are, they'll be more careful the next time they consider doing this to someone. ((()))

  • Are you saying that this whole time she has had pneumonia and they didnt tell you until this last x-ray?  And you have proof???  GET those records and get copies.  I will tell you this:  My nephew DIED at 6 weeks of pertussis, which probably would of not happened had the dr. taken a chest x-ray when he first started coughing.  Oooooooh that just gets my blood boiling!

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