October 31, 2002
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Good morning
I hesitate to blog. Because I wanted to give a victorious blog. And yet I really can't.
I AM greatful that we have a diagnosis for Rainee. But it saddens me her diagnosis. Because theirs nothing I can do to help her. She's not gonna die or anything. She's just ALWAYS gonna struggle to breathe.
The surgeon came in after the procedure. And started out with these words. What we found was very intresting.......Not a good way to start.
And before the procedure she was talking to the ENT surgeon who sat in to give his opinion and said that she had "An acute respitory attack when laying on her stomache." UMMM it was a mild one compared to some we've witnessed. That scared me more then about anything.
So here's the scoop. She does NOT have tracheomalacia. But PART of her problem IS related to the trachea. Her windpipe which is supposed to be about 50% carteledge and 50% soft to allow it to work smoothly. is 80% carteledge. Which means it doesn't function the way it should. She has to work VERY hard to get the air in and out. So that would be bad enough. EXCEPT they also found that her left bronchial tube is mal-shaped. The bronchial tube is the tube going into your lungs if you've forgotten your biology lessons.
Anyhow its extremely floppy. And doesn't open/close right. It IS Passing air. But she has to push very hard to do so.
The result. MUCHO breathing trouble. And absolutely nothing we can do to make it better.
Its a very helpless feeling.
She (the surgeon) did say that as she gets older and her immune system improves it will be less of a struggle. She also said that because she continues to gain weight they are not nearly as worried as they could be. Soooooooo that was a small comfort. Oh and she said that this year would be the WORST and after that we should see small improvements, but this would be something she will struggle with for the rest of her life.
Comments (10)
Praying for you.
Prayers from here! May the Lord heal her.
I'm so sorry that the news wasn't terrific.
I do hope as the years go on her breathing gets much easier. (((HUGS)))
praying for your little girl!
**hugs** to a very special lady ... and you and I both know that even tho the doctors say that there is nothing they can do "now" .... doesn't mean that something can't be done in the future .... discoveries, new methods, new ideas, new technologies and our awesome God can will do something ....
I'm sorry.
I will pray for your precious little girl.
Praying for you and Rainee.
I am glad at least you have some answers! But hopeful that she will not have as many problems as she grows up!
I am sorry i haven't visited more,, God will heal your daughter, with her getting older she will become stronger and prayers are answered when we all come together in HIS name.
ohh Tonia. I'm sorry. Praying for you both.
prayers and hugs for you all..
I'm praying for that precious child of yours..
(((hugs)))
rubymoon
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